IAN VON MEMERTY - CAPTAIN ENTERTAINMENT  
Valeska von Memerty was born in October 1992, a healthy, strong baby who hit all her mile stones. At 18 months we took her for a hearing test for an erratic hearing problem, and after extensive traumatic testing period, she was diagnosed with MPS 6 (muco polysacharodisis 6) a.k.a. Maroteaux Lamy Syndrome. A genetic metabolic illness, which causes all the soft tissues to swell causing massive deformity, dwarfism, increasing paralysis, loss of motor functions, gradual blindness and deafness and proves fatal by the late teens. Viv was 4,5 months pregnant at this time, and we then went through the next round of tests to find out that our in-uteri boy was also likely to be affected, but it was too late in the pregnancy to consider termination and in August the fattest happiest bundle was born – Oscar.
http://www.ianvonmemerty.co.za  In South Africa